"The Spirit of the Lord God is upon me... to comfort all who mourn, to console those who mourn in Zion.
To give them beauty for ashes, the oil of joy for sadness,
the garment of praise for the spirit of heaviness.
that they may be called trees of righteousness;
the plating of the Lord, that He may be glorified."
Isaiah 61:1-3
I had a conversation today with a man who went to school for many years to study my disease. He doesn't know me by my name or by character, by my faith or by my story. He simply knows me by Juvenile Diabetic, patient number... blah blah. I know this because I have seen him several times and he still calls me "ka li".
I went down the list of side effects... all of the things I try to convince myself are not really happening. He stops and asks how old I was when I got my diagnosis. I tell him 15. He looks at my chart and says "oh you're going on your 10 year anniversary"
and I ask myself, did this man really just call it an anniversary? Like I'm supposed to celebrate it? What kind of candle goes on that cake?
He starts to explain what happens after 10 years... how all of this is... "normal". I begin to thank God for my mother who never entertained the word and refused to let me explore normalcy. He tells me this is just part of the disease. It might get better, but the reality is it will probably get worse.
We go over my numbers, we go over my prescriptions, we go over my next appointment...
Perhaps some people would have felt relieved after hearing this. I however (at first) contemplated laying down in the parking lot, begging someone to run me over.
I'm just being honest. I think there's a goodness in that. Honesty, what a tragically lovely word.
So here I am... at the cross roads, waiting for the barrier to come up or go down. I like it when there are no in betweens, when I can know for sure. But that wouldn't be any fun would it?
When I got home I unpacked a box of old journals. Mine and Andrew's (we're connected by our moleskins) and I begin to read...
Page 47 of mine says "I got a word tonight... I will change the sound of worship."
Page 12 of Andrew's says "I feel like the Lord is saying there's something more, I am destined for something more".
Another lines promises children, another line dreams of freedom.
There were all these things we had written down, some before we were married, some after... all these things God had promised. None of it was normal and none of it left room for a death sentence.
I wanted to cry, I clenched my jaw and waited for tears, but none came. It was one of those extremely uncomfortable, conflicted moments.
But in my heart I knew... I know... this is not over yet. There are so many things left on my list and I refuse to give up.
Am I alone on that one? Do any of you feel this way? What is that you're waiting for? I really would like to know...
"Its me and a gun, and a man on my back, but I haven't seen barbados, so I gotta get outta this."
-Tori Amos